Long-Chain Hydroxyacyl-CoA Dehydrogenase Deficiency [LCHADD]

This story is shared by a family who lost a child to LCHADD. Our four-month-old daughter died suddenly and unexpectedly. This did NOT have to happen. A simple newborn screening test, which most parents are not aware of, would have saved her life. Please take the time to read our story. We want to tell it in hopes of helping others. My name is Sirpa Waananen. On March 29th I gave birth to a beautiful full-term, healthy girl. My pregnancy and delivery were normal. Nora was a very content and happy baby, developing normally. On August 9th, I left her for [...]